The European Commission wants the European Health Data Space to make better use of our medical information across the EU. But this shouldn't be at the expense of our privacy. Decisions over our medical records belong to us! We’re calling on MEPs to protect patients' privacy in the #EHDS proposal.

cross-posted from: https://lemmy.ml/post/1181011

We want the right to privacy over our medical records. This means having control over our personal health information, who has access to this information and for what purpose.

We demand you to amend the European Health Data Space by:

  • Requiring explicit consent from patients regarding sharing of medical records for purposes not directly related to treatment(aka for secondary use)
  • Limiting the extensive categories of ‘health data’
  • Narrowing the scope of how this information can be used, and who can access it
  • ollie@reddthat.comEnglish
    1·
    1 year ago

    The problem is… Big Tech already has complete access to our medical records. In the US at least.

    MyChart is a privacy nightmare. As are most EHR systems.

    And doctors don’t understand security even if their lives depended on it.

    They can barely get the records correct!

    Giving data to any medical professional for recording into electronic databases is a no-no.