The team behind menstrual health and period tracking app Clue has said it will not disclose users’ data to American authorities, following Donald Trump’s reelection.
The message comes in response to concerns that during Trump’s second presidency, abortion bans that followed the overturn of Roe v. Wade in 2022 will worsen and states will attempt to increase menstrual surveillance in order to further restrict access to terminations.
Research conducted by the Mozilla Foundation indicates that the app referred to in the article, Clue, gathers extensive information and shares certain data with third parties for advertising, marketing, and research reasons.
Here are some menstruation tracking apps that are open-source and prioritize user privacy by keeping your data stored locally on your device:
So the government just needs to acquire this data from one of those third parties if it wants it.
so what they’re really saying is they won’t give it away for free
They do claim to not share any medical data with third parties though. See other comments for source.
I wouldn’t trust them either way…
Where is Mark Zuckerberg when you need something to “accidentally” get leaked after billions of dollars are spent.
You don’t know how fascism works, do you?
Drip doesn’t save anything to the cloud, it’s all local to your device. I can’t speak to the others.
Which does mean one has to backup and manually move your tracking history to a new device. Guess who forgot to do that 😂
Good idea is to use something like Syncthing to copy data between your phone and another device like a laptop or another phone. This depends on the app, for Drip you have to manually export the data yourself on a regular basis.
Another useful idea is if you have an old phone lying around get it connected via Syncthing and back up everything to it. If your current phone dies or is lost you can switch back immediately, a hot backup. If you have root on your device you can use NeoBackup to schedule backups of the data into a folder Syncthing can access and send to backup locations, say a home computer or spare device.
God I wish I could learn more about this shit.
For all of the Linux and FOSS nerds on Lemmy, I don’t think I’ve seen one make a guide on how to have good digital stewardship of oneself. Syncthing sounds freaking awesome. Still feel like there’s a barrier to entry for me though
What OS do you use? Windows, Mac, Linux? And same for your phone? Android? If so, you should be able to get it set up on your desktop and phone.
First, get it installed on your desktop. For windows and mac go to the Syncthing download page and grab the installer. On Linux you will find install instructing below, but basically use your package manager to install syncthing.
Once it is installed you can start it up and it will open a GUI, most likely through your web browser (probably 127.0.0.1:8384 or similar). From here you will have your Syncthing interface for your computer set up, so on to the phone.
On your phone install syncthing from whichever store you use, fdroid is my favourite. Once installed open it and you should have an option to add another device. You can use this to scan the QR code on your computer Syncthing interface.
Currently on Windows 11 (yuck) and have a Galaxy S23.
Next devices I’m looking at are a Framework laptop and Fairphone.
The QR code sounds super easy which is a good sign. I guess most of my complaints rest with what a full FOSS and pro-privacy cyber-system would look like overall. I come from a Windows world so I have those household names stuck in my head, like Word, Outlook, etc. I guess I’m really looking for a guide that has a 1:1 for the entire OS from Windows to Linux, and maybe more if it improves people’s lives. Thinking Jellyfin and Bitwarden and all those purpose-driven applications.
At this point I don’t know what I don’t know, and I just wish that some of the awesome devs on Lemmy would post a guide to all of this, soup to nuts style. Maybe one day
I think piecemeal is a good way to go. Switch from MS Office to LibreOffice, from iOS to android, from Photoshop to Krita, then go to dual booting Linux (probably Mint or similar) with Windows, learn more using both, find what things you reboot to Windows for, find solutions for those using Wine and alternative software, get used to solving problems in Linux land and learn the tools. Once you are comfortable with a mix of both get rid of what you can, use Windows less and less, try CalyxOS or Graphene for your phone if possible, keep making steps. Each step makes progress, and imperfect solutions are a better starting point for finding better solutions.
That said, for the earliest steps a virtual machine is an amazing tool, as is an old laptop. You can learn to solve problems on virtual or real hardware without making your life harder then inch closer to freedom. I’ve been using Linux since 2006 and honestly it has been a constant learning process. The first year was mostly VM learning, then an accidental install on my external HDD taught me about hubris and data protection. Since then I have kept moving towards more open hardware and software one step at a time. Getting started is the key, nothing teaches as well as trying.
It would be nice if it did have some automatic backup solution. Backup options could be something like Nextcloud, or some local server. Maybe even android backup but the data has to be encrypted with a password and be an opt in feature.
The only way to protect data is to not gather it.
Having your own data can be incredibly useful and valuable, the trick is protecting that data so that nefarious actors can’t use it.
Sure, but tracking period data can be very helpful for people. For a threat model of abortion criminalisation (or maybe trans healthcare criminalisation with treatments stopping periods, or really any kind of restrictions on medical autonomy), encryption at rest of locally stored period data is perfectly sufficient. They are not going to send military intelligence agencies after a random person having an abortion. It is actually a relatively low threat model, like equivalent to buying drugs online or something like that.
I mostly mean having data stored in a centralized database owned by a corporation. Since even if it’s encrypted you’re just one warrant away from the data being handed over.
If only the user has the key then there’s no real concern with the data being handed over
False
I hadn’t seen this comment, thanks for making it.
The apps I wanted to share
They say that, but when Ken Paxton subpoenas them they will say they have no choice. It would be better to use an app that doesn’t store this data server side at all.
FOSS Period Tracking Apps Exist: (there may be others, as well)
https://fossdroid.com/a/bluemoon.html
https://fossdroid.com/a/mensinator.html
https://github.com/TotallyMonica/foss-period-tracker
Also paper and pencil.
Also the oldest known “writing” is a stick with 28 notches on it.
source on the 28 notch stick?
It was some time ago that I read of that, so the details are fuzzy. And here’s what I found:
https://nypost.com/2019/07/25/10000-year-old-engraved-stone-could-be-worlds-oldest-lunar-calendar/
“A 10,000-year-old engraved stone could be a lunar calendar. The rare pebble — found high up in the mountains near Rome, Italy, the hammer-stone was found on top of Monte Alta in the Alban Hills. It’s believed that our early ancestors would’ve used the stone to keep track of the moon’s cycles. Notches were engraved “as if they were being used to count, calculate or store the record of some kind of information. And these notches — which total either 27 or 28 — suggest the stone’s engraver used the pebble to track lunar cycles.” ref
It could also have been The Ishango Bone (https://www.thedailybeast.com/the-ishango-bone-the-worlds-oldest-period-tracker/)
Don’t fall for it. Read their privacy policy.
They keep your data in the cloud and share it with third parties, including advertisers.
Pen and paper doesn’t snitch.
not defending the bogus use of the cloud to host sensitive data, nor do i unquestioningly believe this? but correcting the record since you did 80% of the work in finding the link:
Be assured that the sensitive health data you track in the Clue app is never shared with or sold to advertisers, or any partners whose services we may recommend in Clue.
If you actually read what you sent it seems like the only data that is shared to advertisers is standard marketing stuff like IP, device ID, age group, and location. Still bad and I stand with others recommending locally hosted FOSS alternatives.
There are also foss alternatives. Install fdroid and get drip.
Drip is a horrible name for a period tracking app lol
What an insightful comment, the_crotch
It actually inspired me to start writing my own competing period tracking app, Margaret Plug That Up Already You’re Ruining The Carpet
I like you
I mean at that point just call it Bleed lol
GUSH
That was my first thought. Why?
You guys are talking about it arent ya?
And look how fast you memorized the name.
I had to check my phone for the name.
That will last only until a judge signs a warrant.
Or until the American people get bored with talking about it, like with everything else, then stop caring and just let whatever happen.
Or until Trump decides to have an army of hackers like Putin.
We already do. We wage cyber warfare with other countries the same.
Were people unclear on this? They think that the US is just letting cyber warfare happen without participating…?
Period tracking apps should store no data at all in the cloud.
Some people want convenience of accessing the data between devices.
It’s okay to store stuff in the cloud just make it’s encrypted deeply and thoroughly and that the user is the only person with the key.
There’s absolutely no reason for them to have access to this data.
Yup. I use Tuta for email, and they have a calendar feature that should be more than sufficient. Just set a recurring event for 28 days or whatever your personal cycle is, and you’re good to go! Everything is E2EE, so there’s nothing for the authorities to get.
I’m sure Proton Mail’s calendar feature is equally sufficient here, or you could self-host something like NextCloud and use the calendar that way.
It’s not about having a rigid schedule, but about actually tracking periods and analyzing the data. I’m male and that’s about all I know about it
Eh, a calendar and a spreadsheet should be enough, but I also don’t have menstrual cycles, so what do I know…
I’d imagine it’s the same as personal finance apps. A spreadsheet can be enough, and it is enough for a lot of people, but a custom app can make things easier:
- reducing the friction of keeping track
- built in visualizations
- alerts
- integrating the data with other tools
etc.
I tend to get headaches more frequently at a certain point in my ~monthly cycle, not at the same time I have my period. It’s nice to know it’s coming so I can plan accordingly. Like avoid being on a road trip at that time, or proactively knocking it out with meds before it even starts.
Some people find their cycles affect their energy and recovery a lot, so they adjust their workout plans accordingly. Like knowing when within a cycle estrogen and testosterone are at their peak, versus progesterone.
Aside from just day count between periods, some people track temp, consistency of vaginal fluid, mood, weight, and probably other things depending on their needs.
You actually have your period the same time everytime like in a textbook? That’s sounds pretty nice, first time I heard someone has that. Usually it’s pretty random, like sometimes it’s 20 days sometimes it’s 35 and you have to calculate it with the daily temperature. I’m kinda jealous ngl
I’m a male, but I am married to someone who has periods. And yeah, they’re not textbook, but they’re generally within a couple days. We can both tell when it’s about to happen because my SO’s hormones start going crazy (alternate between angry over small things and affectionate), and like clockwork, the menstrual cycle happens about 2 days later.
But yeah, it’s generally about every 4 weeks, give or take a few days. It used to be all over the place, but now that she’s been better about exercise and diet, it’s a lot more consistent.
Oh that sounds really nice, in that case you really don’t need to use a period app. I have to enter my temperature, cervix condition and (I don’t know the English word for it but you know,) the ‘slime’ condition. Sometimes it’s 6 weeks, sometimes it’s 3, the app helps a lot but sometimes it’s still off.
Apparently the English word is discharge
But how will they make their money mate?
no cloud or get fossed, son.
Seriously how some business makes money doesn’t matter in the context of state surveillance
Is there an open source period tracker that you have contributed to?
There are calendar apps, which should get the job done, assuming your menstrual cycle is pretty regular.
Why would you assume the cycle is regular? It’s a biological process that can vary quite a bit, which is part of why you would want to track it in the first place. There’s also much more to track that just the expected start date of your next cycle. The various tracking apps are quite a bit more involved than just a calendar.
Yeah, I know they’re not necessarily regular, seeing as I’m married to someone with menstrual cycles. I guess I’m just not very familiar with what kind of data a calendar and a spreadsheet can’t solve just as easily.
Actually I’ll agree with you that a spreadsheet could do a lot, but that’s a niche solution. Building a good one requires a fair bit of technical know how, and even using one well requires a lot of understanding.
Yeah they may not cooperate with authorities, but I’m sure they’d be happy to sell it to contractors working on behalf of the government to the same ends. They already sell the info as it is.
Why the hell period data needs to be stored on the cloud?
How much could it weight? A few Kb? Local storage!
I would never trust such data leaving my device when is no need for it whatsoever.
Aren’t there any open source period tracking apps? I’ll do one, it can’t be that hard. An sqlite database patched to a frontend calendar and some basic predictions based on normal scenarios.
Aren’t there any open source period tracking apps?
Many. On F-Droid.
drip. menstrual cycle and fertility tracking (Open-source, non-commercial and leaves your data on your phone.) https://f-droid.org/packages/com.drip/
Drip is a pretty wild name to call your menstrual tracking app.
Everyone says that. Idk what the big deal is
Drip is also available on F-droid.
Haha that is some app name!
It’s the app the comment above me was recommending. I just wanted to make that clear and show that it was available outside the app stores as well.
Cool but the proper solution is that they shouldn’t have access to this data at all. It should be either stored locally, or encrypted on their servers. Companies not being able to access their consumer data should be the default.
Why do they need to save the tracked period data to a server farm? Why can’t it just be saved on the phone, huh?
Probably because they want to be able to maintain users during device switches. Given much of the world is on an annual or bi-annual cycle it’d suck to lose your users each time.
They could just do the password manager approach where the data is encrypted on your phone but stored in the cloud. App retains users, sensitive data remains private.
I wonder how many average users would be bothered to export their period database and transfer to a new phone every time they get a new phone. I do that when I get a new phone (not often, I use my phones till they break/are literally unusable and unfixable), but I’ve had real trouble getting other people to do these kinds of things.
I wouldn’t trust it. We now live in an era where, if you want control of any kind of information, you simply can’t share it digitally in any way.
This kind of surveillance should be something every platform fights against. Remember that the government does not own you and they are only entitled to any of your data at all when necessary to uphold the law and under a warrant. Protect your right to privacy or they will use what you do I private to justify stripping you of all your other rights in the name of justice they will at that point no longer uphold.
Every corporation registered under the US law is subject to the US law.
If you relying on a corpo to protect your data… 🤡
Biowink GmbH is probably not a corporation registered under US law. If I had to guess, the government of Germany will not be particularly eager to force them to turn over data to the USA. The Germans take their Datenschutz very seriously.
Great point. Then they can take the hard stance but I doubt they will not to piss off largest consumer market in the world.
They’ve already taken the hard stance. If they roll it back, they will lose the trust of their users.
🤞
I’d still echo the (current) top comment’s advice to use something open source, local, and encrypted.
No I’m relying on people to protect their own data, I’m saying that platforms should too. Edit: also most of the time they don’t have to turn over anything but do so willingly, they should say no unless presented with a valid warrant.
Corpos are unreliable but yes they should at least pretend not to turn it over.
Unless corpo is using zero knowledge set up, don’t use it is the really the only way to use a corpo service imho
Yeah I think PIA is a golden example here. They’ve got RAM-only servers so they have no data to turn over in the first place.
Pia the third vendor along with proton and mullvad that are considered gold standard?
Does it have it port-forwarding?
There is a setting that says port forwarding in the desktop and Android apps but I’ve never used it. If it helps, I did turn it on once to see what it was and it picks a port for you which afaik can be important.
menstrual surveillance
Now that’s a phrase I would’ve never thought I would read.
Why? It’s a logical outcome of the combination of mass surveillance and draconian anti abortion laws. This is the sort of shit the judicial construction of the implied right to privacy was kinda built around stopping. This is just straight up the sort of shit Snowden warned us of.
So yeah, the federal government (and likely state as well), who have the data from your personal devices to understand far more of your sex life than you want your friends knowing, much less your Senator, are able to purchase or subpoena data from menstrual tracking apps and will do as the law tells them to. The law, meanwhile is written by a group of people who are vastly disproportionately elderly men with little to know understanding of any branch of science or medicine. A group notable for comments like the assumption that ecoptic pregnancies can be replanted and that presenting a snowball disproves global warming. The one gynecologist of note to have been in Congress in recent memory being Ron fucking Paul, who incidentally was anti choice.
To sum my previous paragraph to a thesis statement: people who have no idea how bodies work and couldn’t tell a Skene’s gland from a vas deferens and disproportionately think pee comes out the vagina get to decide the rules by which people who know every aspect of your life that they choose to look for decide if your menstrual irregularities are normal or an illegal abortion.
First I thought “WTF is period data a thing that should concern the government”, but then I noticed we are talking about the future Handmaids Tale country here.
Can’t those app offer this feature : replace all the original data by pseudo random data shifting the menstruation cycle in a way that would benefit the user at that moment ? Or : shift all data to x days (easier to undo)
It’s crazy that we live in a world where we have to think about such things…
