And I am so very tired.

I have chronic pain and have been waiting on this rheumatologist appointment for like 6 months. I’m incredibly hyperflexible on many parts of my body (which causes much of the pain I experience) and my doctor suggested I may have hEDS. I don’t really know what I expected. I believe fibromyalgia is “real” but its controversial status in the “medical community” makes me feel a little uneasy getting the dx for some reason. A major reason, I believe, for the claims that it is an entirely psychosomatic disorder or even that it’s entirely fictional is its prevalence in women and an insidious misogyny permeating our understanding of pain.

Idk. Prognosis is fine. Treatment is eating healthier and getting more exercise. It’s stuff I’ve been doing anyway. It all feels like such a waste of time and money, doctor to doctor, x-rays to MRIs to CAT scans to CT scans and on and on and on, all to be told “your disorder makes you feel tired, in pain, and depressed all the time, and there’s no remedy other than pulling yourself up by your bootstraps”. Ok. I guess I’m glad to have a diagnosis. It doesn’t make the pain go away, though.

  • SovereignStateOP
    link
    fedilink
    91 year ago

    To clarify the misogyny bit, I am a man, at least I’m starting to think I am. AMAB and slowly getting more comfortable with it. Just commenting on why I think fibromyalgia might be such a “controversial” disease.