I didn’t watch her channel, but this is a very detailed write-up about someone’s experience with very extreme long covid. I wish we were doing more to find treatments for people suffering.
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I watched the video they mention too. Made me so sad just to watch and think about, especially all of the people that don’t have such caring loved ones and a social media following such that this disease can be tantamount to death.
I wish we did more in general.
Yeah. I wish I could simply get the people closest to me to even understand why I’m still taking precautions. I’m both at risk of hospitalization/death and very afraid I won’t want to live if I stack long covid on top of my current disabilities.
Yeah, that’s been the hardest part for me as well. All of my family and friends have gone back to normal to the point where they are sick and still showing up to gatherings. Meanwhile my wife and I are still masking everywhere we go. We had COVID back in January and it exacerbated some pre-existing conditions that we are now dealing with likely for the rest of our lives. Then we just got it again last week and decided to cancel our Christmas plans. Our families pretend to understand, but we know they don’t have the capacity to actually get it.
We don’t want to get sick anymore, we don’t agree with the idea of the risk being worth the reward… what reward? Being able to have a mediocre dinner at an overpriced restaurant? COVID is still very much a problem, we recognize that, and we are acting accordingly. It sucks to feel like the crazy ones.
If only we put more focus on health of the people instead of health of the money…
We don’t want to get sick anymore, we don’t agree with the idea of the risk being worth the reward… what reward? Being able to have a mediocre dinner at an overpriced restaurant?
I resonate hard with that and what I’m watching people in my life do. I could see taking a risk for a major opportunity for your life’s passion or something, but risking your fucking health for like bar trivia and Olive Garden or whatever blows me away.
I have a strong suspicion that covid brain damage fucked with a lot of people’s ability for delaying gratification and risk assessment. Ya know, in addition what this capitalist hellscape already does.
It also probably doesn’t help that doing risk assessment on the habits and things that you base your life and identity around require a level of self-reflection that this hellscape greatly discourages in favor of consumption.
Yeah, like when I got married, I threw caution out the window so that we could enjoy a little party with our close friends/family. However, I’m not going to bars and restaurants, I’m not going to clubs and movie theaters. Hell, I barely go to the food store as long as I can get shit delivered to my front door.
My wife and I have actually had a similar conversation about COVID brain and exactly what you mentioned. People in America at least seem to be on a revenge tour to do as much of whatever they want as possible because they felt slighted by the pandemic. I understand yearning to get back to the things you enjoy, but I can’t understand the complete disregard of the past 4 years in the face of good vibes…
I’m also an outlier in that I enjoy my house, partner, and kitties more than I enjoy the public. I am pretty content with my homebody lifestyle.
We don’t want to get sick anymore, we don’t agree with the idea of the risk being worth the reward… what reward? Being able to have a mediocre dinner at an overpriced restaurant?
It’s so frustrating how hard it is to convey this to the people in my life. I was already a homebody before COVID. Sure, I’d occasionally go to the movies or to a restaurant with friends, but these were in no way vital activities for me (I’m neither a film buff nor a foodie). The thing I miss the most is probably live music, but even then I might have gone to one or two concerts per year, and I derive much greater satisfaction from playing music myself. The decision to give up these minor pleasures for an major increase in safety as well as peace of mind is a complete no-brainer for me. Obviously, the calculations will be different for other people, but even so, most people lack the understanding of COVID to truly understand the risks–one of the more insidious elements of “personal responsibility” rhetoric.
I actually managed to set up a hike with some friends I haven’t seen in a while, but even now I’m thinking about how I’m probably still going to mask since we’ll be in close quarters talking and moving in a group and I’m dreading the comments. I hate how I not only have to worry about my safety, but also protecting the feelings of the vaxxed and relaxed when my mere existence reminds them that there’s still a pandemic going on. Well, I guess I don’t have to worry about that–in fact, I really need to work on completely owning my COVID posture and not feeling like I have to convince people of my sanity or bend over backwards to make them feel better.
That is exactly the struggle I’m dealing with at this point too. Standing by my convictions and masking in any setting that makes me uncomfortable or bailing on the whole thing. One example I’m that is especially stressful right now is the holidays. We are just getting over Covid and already changed our plans so we will be closer to home, but that doesn’t mean I all of a sudden want to be at my moms with 20 conservative family members. Getting the guilt trip over my decisions about this really sucks.
Yah, it still blows my mind how her friends can see this shit first hand and then pop right back on the “normal” train.
Here’s the video thread. https://hexbear.net/post/1405216
Oh my bad, I should have checked for a thread. I guess we’re both kinda posting different parts of the same post though. Thanks for sharing.
Oh, no, it’s good here too. Especially since you posted the patreon link. I only didn’t post the vid in this comm because Lemmy handles cross posting weird if you browse all and I think it ends up lessening activity. Posting the patreon gets around that.
