• i_love_FFT
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    15 days ago

    I have a friend who’s now living with ME. Any resources for the general public to better understand the condition?

      • i_love_FFT
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        14 days ago

        For me to be a better friend by better understanding his new limitations…

        He already has a good support network, they organised a fundraiser to get him an electric wheelchair, which is awesome! But at first I didn’t understand why it was helping him, because I don’t know enough about the condition. 🫣

        • Neurologist@mander.xyz
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          14 days ago

          This channel has a bunch of short (5 mins long videos) about ME to educate people.

          There’s also a slightly outdated (but still worth the watch) oscar nominated documentary about it, which has been made free and put on youtube recently It’s Unrest by Jennifer Brea

          One of my patients also runs this excellent website with a bunch of resources about the disease.

            • Neurologist@mander.xyz
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              12 days ago

              if youve got to any, could you tell me what you think? It’s always useful to know what I should recommend to my patients to show their friends and family.

              • i_love_FFT
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                9 days ago

                I’m mostly a “wikipedia reader” type of person, so I don’t have good pop sci sources to recommend… Sorry!