I’m really sorry for your sister. It might slowly get better in years to come, but it’s hard to say.
My sister had post mononucleosis syndrome (long mono). She had what your sister had, but maybe only 10% as bad as your sister. The frustrating thing is that women are so much more likely to get long post viral conditions, which makes it much more likely to ignore.
She’s better than she was a year ago when she was diagnosed, but we’re unsure how much of that is learning to manage it vs actual recovery. Only time will really tell.
“Our findings provided evidence supporting a positive relationship between mononucleosis and AD, indicating a causal link between EBV infection and AD.”
Chronic fatigue is another big one - my sister can’t go out and do things more than two days in a row without being bedbound for the next two.
I’m really sorry for your sister. It might slowly get better in years to come, but it’s hard to say.
My sister had post mononucleosis syndrome (long mono). She had what your sister had, but maybe only 10% as bad as your sister. The frustrating thing is that women are so much more likely to get long post viral conditions, which makes it much more likely to ignore.
She’s better than she was a year ago when she was diagnosed, but we’re unsure how much of that is learning to manage it vs actual recovery. Only time will really tell.
“Our findings provided evidence supporting a positive relationship between mononucleosis and AD, indicating a causal link between EBV infection and AD.”
https://pubmed.ncbi.nlm.nih.gov/34560893/