No longer told I’m young

Not told that it’s my weight

Not told that it’s my mental health

She acknowledges my miserable state

Giving so many vials of blood

I hope to find a cure

Or at least some sort of treatment

For the hell that I endure

Waiting waiting waiting

For the next appointment date

Anxious for a diagnosis

To learn about my fate

The doctor could not tell me

What she thinks is wrong

She started me on medicine anyway

My heart sang a joyous song

More tests need done for a diagnosis

But that’s not the most important part

Being given something to make me feel better…

I’ve waited so long to start.

My whole life has been pain

And suffering and woe

I never thought I’d be taken seriously

And misery is all I’d know

But now I have hope

To be free from this strife

To take my freedom for myself

To be able to have a life

My poetry is hella shitty, but I wanted to post this anyway because I’m really happy that my new rheumatologist is taking me seriously and I need everyone to know lol. I’m finally getting treatment for how shitty I feel after trying to get taken seriously for 20 goddamn years. Hoping the treatment works. :)

  • helvedeshunden@lemmy.world
    1·
    6 months ago

    Hope you get an answer you can use. If you’re in the HLA-B27 group, know that there are community organized help forums out there and let me know if you want a link or two :)

    • LaunchesKayaks@lemmy.worldOP
      1·
      6 months ago

      Idk if I’m in that group or not. I know that the next tests I am getting are to see if I have lupus and/or some other autoimmune disease.

  • DarkNightoftheSoul@mander.xyz
    1·
    6 months ago

    Thanks for sharing that.

    If you try editing the post to make the formatting work, add double spaces at the end of each line before pressing enter, it should make the line break work as expected.

      • DarkNightoftheSoul@mander.xyz
        1·
        6 months ago

        That’s better, but still not what I think you were going for:

        No longer told I’m young
        Not told that it’s my weight
        Not told that it’s my mental health
        She acknowledges my miserable state

        View source on this (the button between downvote and reply, the page with top right corner folded in) comment. Observe that at the end of each line there is a double-space, and then an enter. The double space at the end of a line before pressing return is how to format for line breaks as you would expect in a standard text editor like ms word.

  • Pronell@lemmy.world
    1·
    6 months ago

    It’s a perfectly fine poem, and I hope you get the answers you seek.

    Not taking people seriously is one of the most damaging things we do to each other.

    • LaunchesKayaks@lemmy.worldOP
      2·
      6 months ago

      Aw thank you. I had to drive 2 hours to see this new doctor and it was totally worth it. I exhausted all of my options that were closer over the years.

      • Pronell@lemmy.world
        1·
        6 months ago

        It took my mother more than 20 years before she found a doctor who took her seriously and diagnosed her as having a hyperactive thyroid, then another 25 years before one went over her extensive list of meds one by one to determine she had a one in a million allergy to cortisone that was causing mild organ failure.

        Doctors don’t listen well, especially to women. It’s getting better, but only slowly.